Burden from Study Questionnaire on Patient Fatigue in Qualitative Congestive Heart Failure Research

Pupalan Iyngkaran, Wania Usmani, Zahra Bahmani, Fahad Hanna

Research output: Contribution to journalArticlepeer-review

Abstract

Mixed methods research forms the backbone of translational research methodologies. Qualitative research and subjective data lead to hypothesis generation and ideas that are then proven via quantitative methodologies and gathering objective data. In this vein, clinical trials that generate subjective data may have limitations, when they are not followed through with quantitative data, in terms of their ability to be considered gold standard evidence and inform guidelines and clinical management. However, since many research methods utilise qualitative tools, an initial factor is that such tools can create a burden on patients and researchers. In addition, the quantity of data and its storage contributes to noise and quality issues for its primary and post hoc use. This paper discusses the issue of the burden of subjective data collected and fatigue in the context of congestive heart failure (CHF) research. The CHF population has a high baseline morbidity, so no doubt the focus should be on the content; however, the lengths of the instruments are a product of their vigorous validation processes.

Original languageEnglish
Article number96
JournalJournal of Cardiovascular Development and Disease
Volume11
Issue number4
DOIs
Publication statusPublished - Apr 2024

Keywords

  • cardiovascular disease
  • chronic disease management
  • congestive heart failure
  • guidelines
  • health data
  • multidisciplinary care
  • processes of care

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